Pakistan Brain Tumor Epidemiology Study
Welcome to the Pakistan Brain Tumor Epidemiology
Currently, Pakistan does not have a nationwide
database to maintain information on brain tumor distribution
throughout the country. To strengthen brain tumor care and the
health system for brain cancer patients in Pakistan, it is
imperative to build a registry on brain tumor epidemiology. The
purpose of this registry will be to provide information, at a
glance, about the various types of brain tumors in Pakistan.
This will help streamline the needs assessment for surgeries,
treatments, and other cancer care facilities in the country.
The first step to creating this registry is to
collect data within a limited time frame of brain tumor
prevalence in Pakistan, to show what the distribution of brain
tumors in the country currently is.
Initially, brain tumor data will be collected
retrospectively over the course of one year: January 1, 2019 –
December 31, 2019. Data will be collected from hospitals with
neurosurgical capacity in Pakistan, including centers Karachi,
Lahore, Peshawar, Rawalpindi, Wah, Islamabad, Multan, and
Hyderabad. This primary phase of data collection in the form of
a cross-sectional study will lead to a subsequent Brain Tumor
Registry in Pakistan.
How is data being collected?
Participants will be recruited from each of the
centers based on diagnosis of radiological data or prior
clinical records, and information will be logged via an online
questionnaire. Since this is the first registration of brain
tumor patients, with a primary aim of calculating prevalence in
Pakistan, all patients presenting to the hospitals with a brain
tumor will be recruited.